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PODCAST "LES CAUSERIES DATA": SELF-MEASUREMENT (QUANTIFIED-SELF): A NEW SPORT? ADDICTION? FUTURE BIO HACK ?

The digital culture meeting of our association Data Ring offers you a #5 "Data Talks" about "quantified-self".

 

Our health data, especially our genetic data, are the object of all kinds of covetousness and are currently managed by foreign platforms.

We are heading towards a massive exploitation of our health data, as the promises are presented as extraordinary for the common good.

What are the challenges and issues? Do we really own our health data? Are we free to exercise our rights? What are the dangers of quantified-self (shared with third parties) on my insurance premiums, my job etc.?

Are there not also problems of ethics, democracy and sovereignty that go beyond public and private interests?

A round table with :

- Ralph PETHICA: doctor in bioinformatics, co-founder and CEO of the start-up Genetrainer. He proposes and defends the benefits of tailor-made genetic coaching;

- Maître France CHARRUYER: IT/IP partner, Data of the law firm ALTIJ, President of the legal commission of the Think Tank NXU;

- Maître Manon COUSTOLS: lawyer specialized in health data from the law firm ALTIJ.